Ice Bucket Challenge leads researchers to ALS discovery

Ice Bucket Challenge leads researchers to ALS discovery

Written by Staff Writer

27 Jul, 2016 | 4:25 pm

Remember 2014 when everyone was pouring buckets of freezing water over their heads for the Ice Bucket Challenge?

The Ice Bucket Challenge that went viral in 2014 has funded an important scientific gene discovery in the progressive neurodegenerative disease ALS, the ALS Association says.

The massive, socially-driven fund raising push saw 17 million people posting videos online and a slew of celebrities from Bill Gates to Steph Curry getting soaked to raise awareness for ALS, also called Lou Gehrig’s disease.

However it was criticized as a stunt, but has funded six research projects.

Watch Video below, A compilation of celebrities pouring iced water,

 

Ice bucket challenge: What’s happened since?

Ice bucket challenge, neurodegenerative disease ,ALS,online, social mediaIn 2014 social media was dominated by videos of people having a bucket of cold water poured over their head. So what was it all for again and how much did the charities benefit?

Videos were shared, friends were nominated and countless celebrities were doused – all for a good cause.

In what has been described as the world’s largest global social media phenomenon, more than 17 million people uploaded videos to Facebook which were then watched by 440 million people worldwide.

In the US, the ALS Association – which represents people with amyotrophic lateral sclerosis and all motor neurone disorders – received $115m in donations during August and September 2014, when the challenge was at its peak.

What is motor neurone disease (MND)?

  • Fatal, rapidly progressive disease that affects the brain and spinal cord.
  • Attacks nerves that control movement so muscles refuse to work.
  • Can leave people locked in a failing body, unable to move, talk and eventually, breathe.
  • Affects people from all communities.
  • Kills around a third of people within a year of diagnosis and more than half within two years.
  • There is no cure

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